Sunday, December 27, 2009

Where do I begin....I have been having health issues for a long time now...with no answers from any Dr's. I was diagnosed with Sjogrens just over a year ago from a lip biopsy! I really don't know that much about it, other than what I have read on the internet! Right now I'm in search of a Dr or anyone who can help me! I have so many different things going on with my health and I am lost! Besides the aches and pains I have in my feet and shoulders, the general not feeling good and extreme fatigue, vibrations in my chest and tremors in my arms, choking sensations, rash in mouth and rash in the bend of both arms, numbness in my hands and feet, Hypersensitivity vasculitus on my forearms(medium to large looking blood blisters), I also have Granuloma Annulare. Which starts out as a red spot that looks similar to a bug bite then eventually turns into spots that resemble ringworm's, they first appeared on my knuckels and now I have two on my neck that just showed up last week. I have dry mouth, dry ears, dry skin, hair falling out by the handfuls every time I take a shower or brush it, blood in my urine for years now. I have been seeing a Urololgist and he told me it was caused by a kidney stone until the last MRI and the ER Dr told me it wasn't a stone that there was a spot on my kidney and I should tell my Dr. to send me back to the Urologist and have it looked at again. Went back to him and he acted liked it insulted him that I was back before my next appt. which was six months away. I had blood clots in my stool and went and had a colonoscopy done and the Dr. said that it was probably internal Hemorrhoids which was causing the blood! It has happened several other times with no pain. I have had hemorrhoid's before and knew that I had them because of the pain that comes along with them and I have had them bleed before and knew exactly what was going on and where the blood was coming from! Everytime this has happened it's not fresh blood it is alway's very large blood clots and very dark in color. In the past 4 years I have been diagnossed with High Blood Pressure, Thyroid Disease and Sleep Apnea besides all the other things I have mentioned above. As far as the Sjogrens goes the only thing that don't bother me as much as it does other people is my eyes, I do have some dryness but not that often! I had a Salvary Dysfunction test performed and was told that the glands on the inside of my jaw only produce saliva if stimulated but the ones under my tongue are still functioning but not as well as they should! My PCP really dosen't have a clue...so he referred me to a Rhemotologist that thought that I had Fibromayalga and he put me on Lyrica. and Antidepressants! The Lyrica never helped so he changed me from Lyrica to Medrol, which really made me feel better but made the Hypersensitvity Vasculitus worse. So needless to say I am off the Medrol now. Everytime I bumped or scratched my arm another spot would show up and sometimes they weep blood as if I were sweating blood from the spots. I have been tested for Lupas and the test came back negative but in the research I have done I found out that Sjogrens patients will sometimes come back with a false negative.As far the antidepressant goes...well I am taking it but I really feel like I'm only depressed because no one has been able to help me and I feel crazy! I know my husband gets tired of hearing me complain everyday...especially when everyday it's something different! I hope that in writing this I won't feel the need to vent every little ache a pain to my loved ones! I have left out so much but I am so mentally drained after writing it all down.